He has to fill out a whole new set of forms for the 'overseas treatment purchase fund' , the E112 forms that allow Ann and I travel abroad for treatment.
Did my consultant know this...NO!
Did we know this...NO!
Did my TD know this....probably (he's FG)
Did the media know this...NO!
Do I know what the changes are ...NO!
Does my consultant know...NO!
Does my TD know...I don't know
Does my GP know...I don't know
Does the media know...I don't know.
Who knows?
It seems only the E112 office.
Changing the goalposts is for one purpose only - saving money.
The rhetoric of this government and the HSE stinks...
The Director General of the HSE, Tony O'Brien, presented the Corporate Plan for 2015-2017. He declared these as 'ambitions' for our services ('Health Matters'; Summer 2015). So health 'matters' to Tony O'Brien.
here are the 'Ambitions'.
You could weep, I do weep,,, look at it! Care, Compassion, Trust and Learning. Is this a sick joke? do they truly believe WE believe this guff?
So much care in the HSE that they refused two seriously ill, disabled 62 year olds, with rare neuro-muscular disease decent wheelchairs. That they refused one of them a bath lift, leg risers for her sofa... and so on.
So much compassion that they refuse to dialogue, visit, talk with same two older women. They run rough-shod over policies, denying and interfering when they are not allowed to do so. calling the older sisters 'serial complainers' , when all they do is ask for the care and compassion they are entitled to.
So much trust and confidence that the sisters have they want 'out' of this country, want to commit suicide, want to take the HSE to the highest courts. So much trust and confidence that both have panic attacks on receiving letters with the HSE franking stamp on it. Who handle it as if it is contaminated with ebola!
So much learning is undertaken the local occupational therapists don't know how to properly assess for powered wheelchair and seating for neuro-degenerative disease. So much learning that consultants don't know anything about rare diseases. So much learning that consultants don't appear to know what a 'care' plan is!
"We will try to live our values every day...."
Dear Director General,
How pleased I was to read of the ambitions of the HSE for 2015-2017. Sadly I can give you evidence that the HSE has breached these 'ambitions' spectacularly in the case of Dr Margaret Kennedy PhD and her twin Ann Kennedy, of Greystones, Co Wicklow.
It is urgent that you instigate a public, independent inquiry into the 'care, compassion, trust and learning' that has been the experience of these twins for over 5 years in Co Wicklow.
Your 'Ambitions' are a mirage, a vision, or hallucination more likely. Drafted on paper worthy of better plans.
You do yourself no favours by writing 'Ambitions' that are truly never intended for operational implementation.
We are willing and waiting to meet you to discuss our experience of Co Wicklow's HSE 'ambitions' for us. The 'values' are breached almost on a daily basis.
Yours Sincerely
Dr Margaret Kennedy PhD & Ann Kennedy
Will he meet us...probably not.
Where does this leave us...up a river without a paddle. Sure as eggs is eggs, the HSE has no 'Ambitions' for the Kennedy twins, let alone a paddle.
testing for rare disease in Newcastle UK
HSE trying to take wheelchair off one twin
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