Monday, August 25, 2025

What worries us older folk most?

 

What worries us older folk most?

 

The hot weather has been intolerable for folks over a certain age. Those of us who also have an illness, or impairment  must be especially vigilant. Breathing becomes a big issue. It can be scary, for neither my oxygen nor my NIV Ventilator machine made any difference, I struggled, really struggled.

The Office of Public works (UK 2022) found older people worried about increasing global heat, 59% of 50 to 69 year olds, and 57% of those age 70 years and over, were fearful about extreme weather events, now termed ‘eco anxiety’. I am already in ‘eco anxiety’ about next year.

I am undertaking a small study of 25 older people, over the age of 65 about ‘living well and coping’. ‘Losing loved ones’ and ‘losing independence’ scored highest in fears ranking (60%). Being ‘unable to manage daily tasks’, and ‘going into a nursing home’, scored 40%, Death came in at 28%.  

Maybe we are not ready to look at death yet. There is a fierce ‘inside of us’ feeling to keep coping and live our best.  Sixty plus years of doing ‘it’ ourselves, whatever ‘it’ was or is, we do not relinquish it easily.

My ‘it’ in life has been campaigning for equality and justice in the abuse field. My happiness comes from seeing and being with others who see these values as essential human traits. My happiest time is crossing the finishing line of a campaign with change achieved. Real change.

My glorious times were watching victims of terrible abuse – survive and live life to the fullest.

Retirement is also a time to rock. Fun and fantastic friendships, fun and new horizons.

It seems totally unfair that most of us will degrade in some fashion as we get older, some more than others, some with a harsher path.

We have learned how to cope with a strange and difficult world. We have learned not to blame ourselves, when things do not work out. We learned that doing our best was good enough. Most of us developed the skills not to let the usual bastards trod on us.  Some of us triumphantly overcame to heroic levels.

That feeling of success is not to be given up easily, as we decline, we are forced to recognise all is not the same. It is galling not to be able to open the packet of ham, not to be able to get something off the top shelf, or go out with friends to the local café, or pick a book off your bookshelf.

It's even more galling after reaching the pinnacle of your career; regarded as an expert in your field, to have service providers, doctors, consultants, social workers, HSE managers, nurses, approach your care as if you are not allowed be part of the decision making. Almost, “how dare you have a viewpoint”. “How dare you be in control”.

Even more galling … to sit in a wheelchair, ignored, abused and disrespected in a nursing home and all because you are simply old or disabled.

We read daily of the so-called ‘pressures of an ageing population’ on the economy; it is spoken about as if we are causing all the problems in society.

These are not ‘problems of old age’. These are the problems of a political conservative agenda. It’s all about money.

If society blames us for being old, disabled or ill, it results in rejection, neglect, abuse, and the denial of human rights to be treated well and as we would want.

Why do we think that megalithic, over 100 beds nursing homes, run by multinational companies for pure financial gain, are suitable places for older, sick, and disabled people? How did we get into warehousing older people? how did old people become gaming chips in the race for riches by the rich?

Old age limitations, illness and disability are frustrating and painful to face, but it is the scapegoating, disrespect, and the negative perceptions of who we are that scald our souls most.

‘Quality of life’ and ‘equality of living’, for some reason, is not allowed.  The loneliness, isolation, poor services, lack of care and love is truly overwhelming.

Have we lost sight of humanity, of feelings, love, care… have we lost sight of all that our older folk gave us, or tried to, and many continue? Have we lost sight of what is most important, flesh and blood, not euros and cents?

We seem no longer to believe it is our responsibility to support older people, as they close their ‘book of life’, and celebrate achievements or talk painfully about their shortcomings. This is not how it should be.

It is our responsibility. It is our responsibility to remain human; we must tear down the hundred bed units warehousing older people and begin to love again.

 

Tuesday, June 24, 2025

Another painful week

 

On the 18th June,  the Health Information and Quality Authority (HIQA) CEO, Angela Fitzgerald apologised at the health committee over standards of care at the nursing homes exposed by ‘RTE investigates’ two weeks ago.

 I watched the Oireachtas committee coverage and was astounded by the discussion.

Certain words need careful use and with full understanding. Fitzgerald immediately directed her apology to the families, and the wider community, a glaring omission - she did not apologise to the victims. 

This is striking, and indicates how unseen, hidden and viewed as not part of the dialogue, older people are in society.

If we do not speak to the victims, include the victims, or we assume that there is no point in apologising to them, this is ‘ageism’. A complete denial of their humanity. Disrespectful and degrading. Once we dehumanise a section of society we are lost. Who in the HSE and HIQA have directly apologised to the victims?


Is this the right apology even? Ms Fitzgerald says, “We know you feel you’ve been failed”.  

Ms Fitzgerald, relatives do not feel they have been failed they know they have been failed. But even the word ‘failure’ is a cop out. 

Even the higher transgression she apologised for, ‘a breach of Human Rights’ still does not ‘cut it’.

Ms Fitzgerald finally declares that HIQA has reported to the Gardai their ‘concerns on the ‘care deficits’ uncovered by RTE in the two nursing homes. 

This suggests HIQA do think there are criminal acts to investigate.  

Unfortunately, there is no criminal statue covering ‘care deficits’.  It is,  I believe, in the safeguarding of vulnerable adults legislation thàt has been languishing... somewhere...for  years. 

That’s how seriously this government takes the issues of elderly and vulnerable people’s safeguarding. 

So, what exactly has HIQA reported to the Gardai?

What did we see? We saw physical, emotional, psychological, assaults and neglect. 

Desperate situations of humiliation, degradation, annihilation, disrespect and more.

Attitudes of contempt, disregard and inhumanity. Residents were less than human.

The sad reality is this is not uncommon when older people reach a certain age. 

Who is going to inspect the care given those living in the community under HSE support?

What Inhumanities are they subjected to? 

leaving an older person sitting in urine and faeces at home because there is no care worker available? 

A care worker being told she/he must do their job in half an hour, that is, help an old person out of bed in the morning, then give breakfast. Half an hour. 

Leaving a vulnerable disabled person in their bed all day, except for someone coming in to change incontinent pads and give foodd.

Putting an older person to bed at 4:00pm because no one can come any later? 

Knowing there’s an older person who sees nobody for the whole week, except the home help or the meals on wheels personnel? 

 If any of these actions were to take place within a nursing home setting, we would be calling these work practices abuse, neglect, harm and degrading. There would be an inquiry. 

But it's all 'allowed' and no-one whistleblows. You are not protected under HSE care in the community.

We are simply not getting safeguarding right. I don’t think professionals even know what it is to abuse and neglect an older, disabled or vulnerable person. 

Do all professionals and Heath Care assistants,  at a very deep level, in their heart and soul, respect and value their clients? 

Does our government value this vulnerable population? No, it does not. So please don’t come out and say how angry and how upset you are by the RTE  programme.

Take the Farrelly report, about a severely disabled young person left in foster care to be abused for years. The inquiry report 
took 7 years to complete, but we didn’t get the answers and there was no accountability. 

We had a flurry of outrage, and it is now buried deeply and no more will be done. There will be no accountability. Many went to bed happy and relieved that night.

This government needs to do something and needs to do something fast. There is no good saying our health service is broken and throwing our hands in the air in despair.

I have been battling the injustice against disabled, sick and older people for years. I whistle blew in 2003 about abuse in a learning-disabled institution in Galway and the stalling of an inquiry.

The result of that was the McCoy report, begun in 1999 and made public in December 2007. We who cared, wanted a public inquiry, but that never happened. There was no accountability. Because the government didn’t want that. Too many skeletons in the cupboards there.

We must not give up our fight for safeguarding of those who are vulnerable, disabled, sick and old in society. We have never been good at caring for those who are on the margins. We need strong safeguarding legislation, and we need it now. For those who live in the community and those who are in residential care.

We must inspect every single nursing home in this country and do a better job. We must examine closely Hse/ private community care for safeguarding issues.

 We cannot abandon our elders. They are to be respected, loved and safeguarded. 

Saturday, June 21, 2025

inhumanity in nursing homes in Ireland

 Who is to blame?

 

Recovering my equilibrium following last Tuesday’ RTE investigates’ programme has been difficult. RTE showed two nursing homes, where abuse, neglect degrading and humiliating treatment seemed to be the norm was heartbreaking.

One nurse knew it was bad, said she would “not put her mother or father here”.  Did she do anything about it? Another nurse said, “if we do this, we will be creating bed sores”. She knew harm would result. It was deliberate harm, a known consequence of a behaviour. Nurses are mandated to report abuse.  Disciplinary action should be taken if they did not report it.

More and more revelations are published, a cleaner who resigned tells of call bells being disconnected at night and staff going to sleep on another floor. A psychiatrist writes about the increasing demand for psychotropic drugs to keep patient’s ‘calm’. Which generally means “so we can have an easier time’. ‘The chemical cosh’ – to knock out ‘difficult’ patients.

Why have psychiatrists and geriatricians not advanced on the Government in droves before now? Were they complicit? Supporters of cruel and degrading regimes? Why do nurses, HCA’s (health care assistants) doctors, not say; “enough is enough”. Front line staff have a duty of care. We all do, from cleaner to psychiatrists. Accountability is key. Heads should roll.

Is it Irish culture to treat people so badly? Old people, disabled people, sick people. Maybe it is. You have only to read some of the reports; Ryan, McClean/Kilcornan, Kennedy, Brandon, McCoy, Leas Cross, McIlroy, Farrelly, to realise perhaps violence, degradation, and poor and inadequate care, then secrecy, was/is part of Irish culture! The culture of the HSE, practitioners and workers. What else accounts for ongoing vulnerable people being abused, degraded, humiliated?

It has become so normalised…and acceptable. They can not see abuse, degradation, harm. Or at least they didn’t see it enough to take action.

When HIQA can say ‘non-compliant’ or ‘repeat non-compliance’, without consequences there is no safety.

In the Emeis Homes one staff nurse, the whistleblower, saw and acted.

This has all happened before. Let’s refresh our memories about ‘Emily’, raped by a carer multiple times, in another nursing home (2020). Marcella Leonard, a top social work specialist, with a safeguarding team, was brought in to review the files, of other residents to see if there could possibly be further victims. What happened?

The team sent an interim report to the HSE in April 2021, to give it "a very clear message" that the review was uncovering "systemic evidence" that Emily was not the only victim”.  Yet her teams work was shut down.  

" What does it say about an organisation (HSE) rather than providing that team with more support to continue to find the evidence, they shut them down” (Leanard).  No one asked or answered “why?”

In 2023 safeguarding expert Jackie McIlroy was brought in.

The Irish Association of social workers (IASW) 2023, said the (McIIroy) report vindicated the work of the safeguarding social work team in the Emily case. They added; Adults at risk of abuse are paying the price for poor oversight of safeguarding at both local and national level in the HSE," the group said.

This is a stunning observation, but I know it to be true. Poor oversight of safeguarding is not an observation of professional good practice. It is a standard of shame. It leaves vulnerable disabled older people at risk. The leaders, the managers, are not up to scratch. They are failing. They are not fit for the job.

Then quite shockingly, IASW said in 2023, it welcomes HSE chief Bernard Gloster's "genuine commitment to reviewing safeguarding structures"…was there really a genuine commitment to review safeguarding structures in 2023 following the McIlroy report? Where are these reviews? Where is the new legislation? Where are the new structures? Where is the evidence?

I still await a reply to my own letter to Bernard Gloster. It’s urgent, has been urgent for several years, but I cannot penetrate the HSE answerphone system and they never phone back.  All you get is; “I am sorry I am not available. Please leave a message and I’ll call you as soon as I can”. They don’t.

It is my very sad belief, that elder older people and disabled people are not considered full citizens in Ireland. We are expendable. Nothing becomes urgent. There is no urgent in our care. They wait for us to die. Quality of life has an end point – age 65.

Are we going to sit back and allow that? When does abuse humiliation and harm to older people, older disabled people become urgent?

 

The HSE and HIQA are both responsible for large numbers of vulnerable people being abused in Ireland, both in institutions and the community. Do we now say both organizations are not fit for purpose?

This is a Teabag!

 This is a Tea Bag!

Dr Margaret Kennedy

 

Watching RTE investigates last night, 4th June, on the care practises in two nursing homes was the equivalent of watching and being in the midst of a nightmare, a horrifying spectre in front of my eyes. It was like some monster with powerful tentacles reaching, through the screen to grab me. Pulling me into such a place – to hell. Most days I see that hell. And I fight not to enter it. I have written my letters, to no good effect.

The only way we can now reach the politicians who have power to change, is via the visual impact of an undercover programme. Telling them verbally or writing to them seems to cut no ice.

As an older woman aged 72 with a rare neuromuscular disease, a full-time wheelchair user, incontinent and needing care in my home, clinging on to staying at home, none of what the programme showed surprises me. We saw the ‘known’. We know. HIQA knows. The abuse and neglect, the lack of care. lack of staff, lack of training… it’s all known, It’s not a secret.

From my vantage point, age 72, older disabled or ill citizens are abandoned in Ireland. We are being warehoused. ‘Living’ is not discussed. Where did we see life, enjoyment, community in those places?

I have been in three nursing homes for respite care. In one nursing home I lasted 12 hours overnight, in another nursing home - four days, and in a third, a newly built, 100 beds, I lasted 24 hours. I could not stomach the humiliation, disrespect. degradation and the annihilation of who I was. It was excoriating, mentally, physically and emotionally. I have a PhD and yet, a care worker saw fit to tell me what a tea bag was. At that point, enough was enough. Out.

There is less and less community support, help from the HSE.  When I could not fill some gaps in my care rota, I told the elder care team manager, his response “I hope this message finds you well. Unfortunately, I do not have carers available to assist you, this area does not have a statutory home support agency, so we neither have carers available or employed to redirect to you”.

 No help from the HSE is common.

I met Bernard Gloster in March 2024, the HSE CEO for an hour. He made promises. A part time social worker would be employed to sort out my needs. He was kind, listened. Then he sent me an official letter with the agreements made. I felt very hopeful and very happy. So, what did happen? Over a year later - nothing.

Two new part-time social workers have been in post for about six months, now working with other people... but not for me. Not allocated. No reason given. I have written to Bernard Gloster; he has not replied. A year later, the HSE despite Bernard Gloster’s Directive/promise, ignored his letter.

A nursing home will probably be my next step, because there are few carers in the community. More and more nursing homes are being built, I will not be going there. I have made that clear.

A nursing home in Mayo was inspected by HIQA and was found to be non-compliant. It has 69 residents needing nursing care, convalescence, respite, dementia and palliative care. HIQA found overly restrictive practises. There was an over reliance on the use of television to entertain. Many residents were seated in a row in front of the television for long periods, with little engagement or stimulation provided. Residents who spent the majority of their day in their bedrooms were not observed to have any social interaction or access to meaningful activity other than television or radio on the day of inspection. More than ten emergency bells were missing from the resident’s bedrooms. A repeat finding. Water and tea were left too far from reach. I cannot say more. It is too distressing. Are we not human?

I have read many HIQA reports, nearly all report similar findings. The inspections are done, but do conditions improve? When will we call being seated in a row in front of a television all day, emotional and psychological abuse?  When will we say the residents are not safe? When will we call this abuse? Nothing changes. We are warehousing, we do not care for our elderly people. Sitting in front of a television is not quality of living.

We should be inspecting for ‘quality of life’, not just feeding and cleaning, not just dressing and washing. ‘Quality of life’ is about living. Feeling part of the community, being stimulated, having enjoyable things to do. Feeling useful. We should have a meaningful lifestyle even at 80 and 90 years old.

 “I’m not dead yet”, my life should be useful and fulfilling. I will not be warehoused. I will never be warehoused.

Saturday, July 29, 2023

All survivors are sisters and brothers.

On friday I took myself off to Bray Co wicklow, Ireland. Or rather my PA (personal assistant) took me to Bray. It was tough, I'm no longer able to walk, use awheelchair 100% of the time, rarely feel well, in alot of pain. Getting into a car wasmightily difficult. but much pushing and shoving, clinging on, heaving, yoiking -  sort of corkscrewed into a front seat of my PA's car from my wheelchair. She handed me a bunch of flowers we'd picked from the garden. I had both purple and green ribbon and I tied them all together. They looked wild and beautiful. on arriving at our destination my PA asks "what do you want to do?"  "get out" I replied, the whole seafront was awash with children and adults - for the fun fair - those frightening machines were throwing people in the air and came plunging down with stomach churning regularity. They whirled round and round with obligatory music and flashing lights. Screams and laughter fillled the air. 

We went the wrong end of Bray seafront, my mistake, and Gardai knew well our destination. On arrival I saw an empty large house. Weather worn, with driveway appalling in brokeness and in need of TLC. The whole house needed TLC. 

The PA got out to get my wheelchair out of the boot of the car, as battered as the house, it was all I had. far too small and I hung on for dear life as I reversed corkscrewed OUT of the front seat into it. The road was pitted with a draincover painfully in my pathway. No proper wheelchair camber to get onto path, and I'm a heavy woman now, I clutched my bunch of garden flowers, a card attached. I chose a spot to tuck them behind a chain wrapped around the gate pillar. Then I wept. 

I was upset - very upset. I was at Sinead O'Conner's former home. She'd lived here for 9 years, but no longer. it was sold and will be turned into flats. Not that the people of Bray want that. I wrote (as requested) an Obituary of Sinead for a Christian Site. I wrote from my heart, how I understood her. We survivors do. How I understood the escape from painful pasts, trying desperately to live in a confusing, frightening world. Clinging to roles, making them up, experimenting because you simply don't know where you 'fit'. Your memories, experiences are so counter the norm, you feel you don't belong. You have done things you dont want to talk about, been ridiculed, abused, even raped for just being vulnerable, yes, we never really become NOT vulnerable! 

I did understand Sinead as all survivors of abuse did/do. We owe her a great - debt. 

my obituary

   https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.premierchristianity.com%2Fobituaries%2Fsinead-oconner-1966-2023-a-wanderer-priest-and-prophet%2F16031.article%3Ffbclid%3DIwAR1XzoaRcHdnkiYgazeC19L8nKZxYctzdlu_3q8jVP8xoZQnPe01sDUWkNU&h=AT1phkZHxIg8pnRQQkNet_qrZQUru8WSRhrmr661dR4JhvonAvS00Bmxm-UKMD0ZBE-OWPqYMSmug2zkiIjh4O8Z-5_UN5xVdhIHs95axfjZIAUicVrY6ajZjAAPeXDEAw&__tn__=%2CmH-R&c[0]=AT1Of3Zqb_YZ9eyQIiaJ0AH3hfP6YV4S9O2bNpqUKd4LJVetny6R34PZoYxSqpEB2XikMaD_98TDToaw2SupYdtuLi065DOf8EvFxy7t8qcesf2w3hPbzXRCIS-5qSsXcekjrHn4pF7RABS8GjYmoISK4ImCFC-z29rzgnM_KdmcvqMUu_c

We are Sinead's sisters and brothers. and all is now clear;  

a) she made a real impact 

b) people did hear her message 

c) there is an awful lot of hurt people in the world who now openly cry....for our sister. 

d) she was a 'Wanderer. Priest and Prophet'

e) We are going to miss you Sinead


 Sisters and Brothers, we will not be defeated.

 Sisters and Brothers, we do not walk alone

 Sisters and Brothers we will not let shame or guilt consume us

Sisters and Brothers, we will share the pain and the journey - together.


Our friendship,

    our solidarity,

        our anger

           our fight for justice,

             our liberation is in truth-telling,

                 our calling to account,

                    our protesting

                      our remembering

                        our proclaiming

                               The Truth


 

Survivor: We were never meant to survive

 All:        We were meant to be silen

 Survivor:     We were imprinted with fear

        all:         We are no longer afraid

 Survivor:    we were not supposed to talk

           All:         We will no longer be silent

Survivor : We were meant to keep it a secret

          All:   But now we are talking

 Survivor : We were not supposed to be angry

 All:   but now we are raging

 Survivor :  We were not allowed to cry

   All:      Now we are weeping

 Survivor : We were unloved and forgotten

 All:  We are forgotten still

Survivor :  We are hurt by our Churches/family

 All:  We call for repentance

 Survivor :  We are not supposed to challenge

 All:     We protest and seek justice

 Survivor :  We were supposed to be silent

  All:       Never again….

 Survivors together :  We will remember and proclaim

 All:                               we will remember and proclaim


For you Sinead - all our Love - Sing loudly with the angels and your son

                                        SING




Wednesday, February 15, 2023

Older Disabled people in Ireland

I've past the from my 60's into my 70's, now aged 70 I'm definitely catorgorised as 'elderly'. I failed to represent myself as a disabled person. I've been moved from disability services to elder care services and the move dropped me down a well shaft I cannot get out of. 

An elder care physiotherapist offered to ' bring me a sheet of exercises to do' - which effectiely means I don't get physiotherapy. I am a full time wheelchair user, incontinant and depressed, sheets with wee diagrams of how to raise arms and legs and stuff is not what I need. 

The elder care OT was ultra energetic and told me she'd get my office into shape for accessibility and wheelchair use. and declared as she left the house "next week operation office". She beamed me up and I was so grateful, relieved and happy...only 'next week operation office' never happened. She came and declared "have you anyone to help you tidy up?"  This is NOT quite the same as a skilled disability specialist making your office accessible. I plummeted down mega stages in depression. 

I refused to see either again. I know crap when I see it!

The geriatrician came to assess me (third one to do so) and declared she didnt know why she was doing the assessment, neither did I, I had undergone two assessments in Tallagh Hospital by an eminant Geriatrician...who made recommendations - never acted upon. This is par for the course. 

I asked for her report, I never got one, never saw her again, GONE -God knows what she wrote down. When I ask her to come back I'm tld I'm outside her catchment area...HUH? I wasn't when she came, now I am. Its enough to drive you insane. 

Now they tell me they want me to see another Geriatrician (the fourth) miles away. 

and so it goes on. 

I'm in elder care - hey - that means 'die for gods sake - die!'

Sunday, September 19, 2021

political representation of disabled people in Ireland - tokenism

 I am inviting disabled individuals, organizations, friends and relatives of disabled people to allow me put your signature on this letter I wish to send to the media and political representatives. I write it after Thursdays committee failure to represent us. say 'yes' to allow me include your signature and send message to my email: magsken57@gmail.com I will need your 'yes' TODAY. or at least by 10am tomorrow Monday 20th September.

Dear Sir/Madam,
The 2016 Census tells us that 643,131 people in Ireland had a disability. That is 13.5 per cent, or 1 in 7 of the population in Ireland has a disability. I certainly suspect this is an underestimation and has increased since then.
We have ‘representing’ us within the Oireachtas, ‘The Oireachtas Committee on Disability Matters’ . This committee was due to sit last Thursday and only four elected politicians turned up. Holly Cairns (SD), Violet-Anne Wynne (SF), Pauline Tully (SF) and Sean Canney (Ind). No senators turned up, so the meeting could not take place. Looking at past attendance records; one TD only attended 1 out of 18 such meetings. In other words we disabled people are NOT being politically represented. We seem of no interest or value to elected politicians.
Disabled people in Ireland deserve better than mere tokenism. In 2018 Ireland ratified the UN convention on Rights for Disabled People (UNCRDP); this gave disabled people Human Rights. Ireland was the last European country to ratify, and yet our Irish political representatives failed to ratify the Optional Protocol (OP) that allows us take Human Rights infringements to the UN. Ratification was indeed, a political fudge on our Human Rights – tokenism.
Disabled people are poorly served at every level of society; from the cradle to the grave we are playing ‘catch-up’ to fellow non-disabled citizens. We struggle to have our disabled children educated at highly skilled levels, to enable teenagers plan for university, jobs, and roles within society, to enable adults to be employed (often passed over due to discrimination), to enter professions, public life, political life. We have nearly 2,000 young people in nursing homes because the care and housing sector is pitiful for young, more severely impaired persons needing care.
Aids, adaptations, equipment – even provision of wheelchairs are at Dickensian levels of standards and provision. We must languish without wheelchairs for months if they ‘break down’.
Independent living is NOT supported. Certainly not supported for older disabled people who want to stay in their own homes, surrounded by their life’s endeavours; pets, family, books, collections…old disabled people must move – automatically – from the disability HSE oversight to HSE elder care, whether they want to or not!
As for transport, we cannot access many train stations due to lift breakdowns, non- serviced stations, and inaccessible stations and demands for pre-notification to travel. Rural transport or disabled people is virtually non-existent. Both the mobility allowance and transport allowance were taken away and never re-instated, as promised.
Covid hit the disabled and elderly disabled persons particularly hard as there was no framework to support us. Carers were not given PPE, nor immediately vaccinated. We had to cut back on carers to keep ourselves safe and alive.
We the undersigned have ‘had enough’.
We now demand;
• A quota system to facilitate the election of disabled persons into the Dail.
• Ratification of the Optional Protocol immediately.
• A political shift from the charity model of support to a social model framework that facilitates, independent living, human rights and equality of citizenship rights afforded non-disabled people.
• Increase in all social welfare, pensions, medical care, primary care budgets for disabled people, to cover cradle to grave needs and a life worth living.
• A radically improved budget for such things as wheelchairs, aids and equipment, home adaptations and living supports.
• More public housing that is specifically designed for disability access and disabled persons.
We will no longer accept the ‘begging bowl’, ‘tin-rattling’, position in society; we are NOT accepting the position of ‘bottom rung’ on the Irish citizen ladder.
Last Thursday’s Oireachtas ‘Committee on Disability’ meeting just exemplifies our status. Politicians treated us with contempt. We did not matter.
We are citizens of Ireland, not second class citizens and we proclaim that position loudly. .
Yours Sincerely,

Friday, June 12, 2020

Where is our Platform?

Every day disabled people must fight to stay alive - to have a voice - to have meaningful lives.

We know oppression from the day we were born. First in the ableist mentality that we are 'mistakes' of nature, punishments from God, abnormal, to perennially, either made NORMAL (operations, education, therapy etc) or put on the charity list for services! Being not a 'normal' citizen we must rely on the generosity of the 'normals'. Nothing is had as a citizen.

Ah the poor dears - lets set up a charity to 'look after them'. Thing is folk many of those charities we have no control or power within. Run by possibly well-meaning people, but usually run like businesses where the consumer is not consulted and CEO's and minions wages swallow up the funds raised by the general population - the box rattlers - collectors of money.

Growing up art, riding a horse, swimming were all THERAPIES whilst our 'normal' peers just went swimming or horse-riding for God's sake. But we are DIFFERENT so when we do what 'normal' people do it must be labeled differently.  and if we argue the toss, boy do we get hammered by those 'normal/neuro-typical s. They don't do criticism well and bloody hell we ought to be grateful!

then at the end of our lives as 'oldies' past 65 (I'm 67) our disabilities, or abnormal body becomes miraculously 'normal'. No longer disabled, services , such that they were, are removed...we shift from disability to elder 'care' and get nothing - much. For now our 'state' is normal....we are old, no longer disabled so all policies for disabled people and rights...need not apply. Our state now is 'waiting to die', why else did all the older folk, by definition - disabled, die of covid 19 in nursing homes. Ah well that was 'normal' for THEM!

You couldn't make this up you know. The evolution of Disability oppression is worth study. It begins and ends with deep disrespect for our bodies.

Black and Ethnic minority groups know this. Racism is based on 'body' - the colour of!
Its simple yet truly awful. White is 'normal' , black definitely not.

So we 'abnormals'; who do not fit the White/'able-bodied' (how I hate that word) stereotype = NORMAL - we are to be oppressed, kept in our place. And our place is to have no power, no control, no say.

For us disabled/ill/old our battle is often with doctors - who decide whether or not to 'accept' what we say or declare what comes out of our mouth 'abnormal' too!  Doctors have not championed our cause, far from it.

Next battles involve HSE professionals who rather than putting into place a platform of equality they perpetuate inequality and misery, From not supplying PA's to not supplying wheelchairs, aids and adaptations etc because you are judged not 'abnormal' enough!

So who decides HOW disabled we are? - them! Take all medical/community assessments - THEY decide the criteria, rule out certain features, diseases, difficulties to shorten the list of provisions needed.  That's how it works. Always.

As for Politicians - don't get me going!  They see our misery and look the other way. There's not been a Minister for health that champions our health RIGHTS. As for FMcG...so long as he's praised to the hilt that's all that really matters. Ego above Oppression.

 So, do you detect cynicism, a slight irritability, a degree of anger - you bet you do.

I'm sick to very death of not being allowed to live.

We need OUR platform. our riots, our protest, our rage, our time to say 'enough is enough' Disabled lives matter

Wednesday, May 27, 2020

A Leader in the Park

After months of 'lockdown' we are all champing on the bit, rearing to go, go go...Covid 19 has us all exhausted. Some more than others. Grief is all around - for those that died, for everything really. We are in shock, disbelief, horror at the savage onslaught of Covid 19.

So...what of the Irish Prime Minister (Taoiseach) having a semi-naked picnic in Phoenix park? doesn't he deserve a break? Is he not human to?

Yes & Yes BUT....BUT...there's a but!


Is it right?  What do I think? 

As someone who is age 67 with a neuro-muscular disease, in a wheelchair I've had to endure total lockdown. No carers near me for fear of covid.  No hospital or GP appointments, indeed no medical care whatsoever!

I am alone  trying to live without catching Covid. I've taken strict precautions. STRICT. I don't go out. I see no-one. 

and I see my 'leader' gamboling with his mates, shirt off, Garda in attendance, Leo having a laugh in the park....

This is a punch below my belt so it is!  Its an insult to us plebs!  when the elderly are let die in nursing homes all around the country. We disabled , sick, elderly were not considered. At all. When Covid began I asked for PPE for my carer's - refused. REFUSED. so I cancelled my carer's. how could I let them in with no PPE? How do I cope? badly. in pain...suffering...

I'm still seeking medical care but no-one is listening. I don't count in the covid era,but hey- our Taoiseach is OK .  He can go romp in the park and forget us cocooners, elderly, alone, sick, disabled, frightened...he can enjoy...

I see him with utter contempt...this is NOT Leadership...this is insulting every older, sick, disabled cocooner.

Yes Leo, you slapped us in the face! It is NOT befitting a Taoiseach. 




Wednesday, March 18, 2020

Jean Vanier: Desecration of women


The well from which we drink is poisoned
Dr Margaret Kennedy

Jean Vanier the founder of l’Arche, has now been revealed as a sex offender. This has been shocking and hugely painful for many women and men who for years revered him and learned from him. To know that your idol has clay feet is hard to compute.
To call someone a sex ‘offender’ is not to automatically place the person in a criminal context. The criminal law has not yet caught up with the whole notion that vulnerable women can be coerced into exploitative and abusive sexual activity from which they have no mechanism to extricate themselves. However these men are ‘offenders’.
In America there is a distinct statute of criminal law for any professional who sexually molests whilst in role as a professional. In some states clergy are included as professionals. The UK or Ireland has no such statute.  
Vanier, taking the role of spiritual director, mentor, counsellor, would and should be regarded as having a religious professional role.
We now know and understand the whole notion of ‘grooming’ that takes place when children are coerced, encouraged, manipulated into sexual activity with predatory sex offenders. These sex offenders skilfully silence the child. We understand that children cannot consent to sexual activity and when it does happen it is a criminal offence and not their fault.
However it is not the same for adult women. The first thing many people think is why did that woman apparently ‘agree’ or ‘acquiesce’ in the sexual contact. After all, she was not a child, but a grown adult. Was she not capable of consent or not consenting? Vanier was not a cleric, but to all intents and purposes he acted like one. What he did needs exploring in order to safeguard women.
I am now an older woman of 67 years, years where a lot of water has gone under the bridge since I was molested by an Anglican priest when I was aged 25. The horror and terror of those frequent assaults has never disappeared. I too, for years, wondered why I would ‘allow’ this priest enter my flat to do what he had aimed to do and planned to do. For his behaviour was predatory and I later found out I was not the only victim. There were at least three others; four of us.
He was the chaplain of the college I attended and he molested several women attending Christian Union. It took me years to deal with the shame and guilt of his serious sexual assaults and I did that by trying to learn about myself and about why clergy target adult women.
My learning began when I set up a group called ‘Christian Survivors of Sexual Abuse’ – CSSA, in the late 1980’s. A support group for Christian women who had been sexually abused as children.  When women started to come forward as victims of abuse as adults, I had to think deeper about what happened to me as well.
I then knew it was not my fault. I had believed I was the only person this happened to. How wrong I was.
None of us believed we caused our own abuse, but we did suffer shame and guilt and this was very difficult to deal with. We had no one to talk to except between ourselves. We had no literature to read, no groups to go to, no advice to obtain, no law to have recourse to. We were deemed adults able to consent. We were often blamed, thought able to repel – if we wanted to – predatory clergy. Even blamed for ‘seducing’ the clergy person. We made no headway asking our Christian denominations to challenge this sexual exploitation, to censure the behaviour, to deal with it. Much of this is still the same today.
If we did report it to church authorities it was conceptualised as a relationship, albeit a wrongful relationship. (Just to add to our shame and guilt). Some denominations even conceptualised this as an ‘affair’ or ‘adultery’.
It was deemed ‘conduct unbecoming the priesthood’ (Anglican Church) or breaking celibacy vows (Catholic Church) if it was deemed anything and mostly our cries were ignored.
Notice why it was ‘wrong’, and where the focus was…it was ‘unbecoming of the priesthood’ and ‘celibacy breaches’.
It was never viewed as sexual assaults on women. The focus was male behaviour in context of their priesthood. It was priesthood that was harmed, not the victim, the woman.  We were invisible.
In my PhD research I learned the definition of sexual exploitation;

Sexual exploitation occurs when a person in authority, in role, as Clergy, Minister or Pastor sexualises contact with female parishioners or those who seek his help for his own sexual gratification.

It constitutes exploitation whether or not women consented, if at the time they are a ‘client’ or parishioner.

The Pastor mis-uses power and role whenever they sexualise contact with someone to whom they have a duty of care.

Consent is compromised within a setting where the woman seeks the advice, counsel, teaching or spiritual direction of her Pastor.’

If women seeking guidance or spiritual direction from Jean Vanier had known all this they could have safeguarded themselves. If the Church believed it; the women would have been safeguarded.
Also as part of my PhD research I analysed language use in many articles concerning clergy sexual exploitation. There were constant deflecting euphemisms employed to ‘soften’ the reality. I called this ‘false naming’.
False naming is a major component of institutional violence, for it helps to accomplish denial. False naming means we can avoid responsibility and it protects the abuser. False naming creates false consciousness. It avoids assigning responsibility, thus cloaking the identities of the offender. This false naming sends a message to an offender that he has still not been found out and that the Church is not concerned. False naming allows women to continue to be abused by clergy.
I categorised ‘false naming’ under headings. Under ‘normalisations’ I found this language; Affair; (Extramarital/Clandestine), Sexual liaisons, falling in love, adultery/marital infidelity, infidelities, unfaithfulness, sexual relationships, relationship, sexual attraction, sexually intimate, sexual seduction.
Under misconduct I found: Sexual misconduct, sexual malfeasance, violation of forbidden zone, abusing intimate relationship, misconduct ‘mess’, Profession al sexual misconduct, sexual infraction, sexual misdeed.
Under pathology I found; Sexual addiction, acting out, intimacy deficit, boundary diffusion, sexual boundary violation, PSM (professional sexual misconduct) Non-paraphilic sexual interest.
Under minimization I found; inappropriate behaviour, become involved – involved sexually, inappropriately involved, involvement – emotional entanglement, inappropriate touching, sexual encounter sexual contact,
Under Euphemisms I found; the phenomenon, straying into dangerous waters, fallen, situation, the problem, male malady, get into trouble, delicate situation, trouble, clergy crises, this intimacy, dalliance.
Under misbehaviour I found; sexual escapades, naughty, transgressions, indiscretions, succumbs to sexual attraction, sexual favours.
Under morality I found; sexual impropriety, morally indefensible behaviour, moral failure, immorality, moral lapse, wrongful sex.
Under weakness I found: sexual temptation, personal failure, failure, intimacy failure, human frailty, and mistake.
Under theological I found; Sin, evil.
The only categorisations I accepted were under; criminal acts; Crime, Sexual offence, rape, sexual exploitation. However we are still light years away from criminalising professional sexual exploitation in pastoral settings.
It certainly seemed no author of the many articles I examined could name correctly what was happening. The offender was either out of control, immature, misled, encouraged, in a relationship, or committing adultery or in many other categories. He was portrayed as not particularly responsible nor causing much harm.
I knew this was all wrong. I knew I was neither in a ‘relationship’ or that it was an ‘affair’, (the man was married) or any other category other than it was a sexual crime against me. It took years to get to this point. 
I was a troubled young woman, already needing psychological help and had previously been hospitalised. Those early years of my adult life were torrid and marked by childhood trauma and abuse. This predator priest chose well! He had targeted me.
We had been manipulated, and mentally and emotionally trapped into something we did not consent to, we did not want and we certainly did not like. Finally, we did not know how to ‘get out’. But we were adults and no one wanted to know.
I wanted to know, I wanted to know how this happened, why it happened and what was the harm done and how recovery could be envisaged.
Realising that over the years of my CSSA work 200 women had contacted me to share clergy abuse as adults, I knew I had a pool of subjects for a doctoral piece of research on ‘clergy sexual exploitation of adult women’. 127 woman were interested to be part of the research, but 65 women were final subjects of the study.
My starting point was to only focus on situations where women had met clergy in the professional or pastoral setting. Women had not met the clergyperson on the golf course.  The beginning was not in the context of an equal friendship but in professional – parish work or pastoral care.
The clergy/pastor/religious leaders denominations [1] were; Anglican 25, Roman Catholic 25, Baptist 4, House Church 2, Methodist 2, Assemblies of God 1, Pentecostal 1, Quaker 1, URC 1, Other 1,Unknown 2. Interestingly the majority were married men. Celibacy was not the issue.
Most of the women had desperately traumatic or abusive childhood or adult circumstances. Which rendered them vulnerable. They had, already, before meeting the clergyperson experienced multiple forms of abuse; Emotional n27-71%, Sexual abuse n25 -66%. Physical abuse n16-42%, and neglect n8-21%. This makes clergy sexual exploitation the more egregious.

They were not abused, necessarily, because they were vulnerable, that notion posits the cause in the victim. Vulnerability is a risk factor, but cause is male power and choice. They were abused because they were women, and clergymen had male privilege, power, control and wherewithal to do it and get away with it.

Clergy abused because they could; because their Brothers in Christ did also, and because the Bishops or leaders chose to protect the Church from scandal and preserve the clergys ministry.

Women were targeted and groomed.  From early subtleties, to later assaults. Nine women were raped, one made pregnant (she had an abortion) and still no justice resulted.
The most painful part of the research was hearing from the women how clergy ‘hooked’ them.  For some there was no ‘preamble’. Listen to what some of them said;
He talked about his chastity and purity and how the cross he carried was so heavy that he needed me to mother him. (Q25/RC)

He came in and he seemed more excited than usual, and he scared me, because he was unpredictable, we were in the front room, and he immediately made a grab for me, and undressed me, and it was like when I said I felt like a doll, that I just stood there and he treated me like a doll.  And he was he was excited and out of control (nine second pause). (4/Ang)

I needed to know sex was beautiful and he wanted to show me, this was before he raped me. (Q82/Baptist)

He declared undying love.  I was the woman he should have married. He was also aware that he was leaning very heavily on me as his own marriage was very destructive and he had reached the end of his tether with it. (Q78/Ang)

Yes, to begin with he was worshipping, adoring, loving, and affirming.  He said he loved me.  Later, he resented the fact I expected to see him.  (Q74/RC)

He told me what he was doing and what had happened as a child was because I had a spirit of lust, and other unclean spirits that caused it all to happen.  He was, having to fight these spirits in order to help free me, but some days he failed!  So I was very confused and full of fear. (Q20/Baptist)

I had a spirit of enticement and that I needed deliverance, and that I should seek God about that. (26/House Church)

These clergymen focused on the most vulnerable trait of women, their strategies were deliberate, often planned. If women had been in a domestic violence situation, the clergyperson would show care, support and gentleness never before experienced. Often rescuing them from the violence, even finding accommodation. If the women were child abuse survivors and found all things sexual a horror or traumatic , clergy often argued they, being priests, could neither be wrong or bad, or that the sex they offered was ‘Holy’ therefore healing. Some clergy even said; ‘God asked me to do this’; it’s for your benefit not mine’. Others, so traumatised by childhood experiences felt the priest truly ‘loved’ them unaware they were being exploited only for sex. Only years later did they realise they were duped.
Some clergy sex offenders wanted and demanded ‘payment’ in kind – sex. One woman in Ireland was pregnant at a time when single women often had to have their babies adopted. The priest said he’d make her his housekeeper and she could bring the baby. In return he demanded sex and brought her to a gynecologist for the pill at a time when contraception was illegal. He had done this before, regularly securing ‘housekeepers’ from an adoption agency in Dublin.
Other clergy used women’s ignorance of sex , inexperience as excuse to ‘teach’ how sex worked, such as for the nun going to confession who was asked about masturbation and slowing drawn into alleged ‘loving sexual activity’, admonished to not reject it – at least with him – for her benefit.
This is part of what she told me:
We were talking he sort of looked around, dropped his trousers and gave me an illustrated lesson on the male genitalia I have the visual image Im not sure whether it was at that time or whether it was at other times when he asked me to hold his penis. It was always a suggestion well, this is not for me, it is for your benefit and growth [He would say] I think, I am sure you would like to hold my penis now. There were things being said like youre going to experience a lot of sexual arousal but thatll be good for you in the long run, and of course I am so completely in control that I dont feel anything ...I am beginning to feel angry now. [He said] You will feel so aroused that you will want to be raped.  He used to say that, he was always in control; a kind of a sense of Im doing all of this for your benefit. (73/RC)

MK: And what did he say? (about masturbation)

73/RC: I’m…stopping here.  I mean I can find myself stopping. [He said] “The right hand causes you to sin, cut it off and cast it from you.”

MK:   If it was a sin for you to masturbate – then why is it OK for you to hold his penis?

73/RC: The logic of that never occurred to me.  I never actually saw the incongruity of it placed side-by-side before, even.  I do see it now.

Women were made dependent on the clergyperson, were told they needed him, would not cope without him, would fall apart if he wasn’t around or he’d fall apart. This frightened them, so they stayed.
In the research I identified distinct behaviours or rationalisations by the clergy abusers to groom, entrap, and abuse women. These were; blaming women; use of coercion, threats and fear; claiming male clerical privilege; the good deeds: rescue and gratitude causing dependency; emotional manipulations; isolation and forced secrecy; theological justifications; romantic deceptions and therapeutic deceptions. These men had a full armory to trap women.
Women dealt with their abuse in different ways. Some went into dissociative states whilst sex was happening

It felt like I was in a glass bottle looking at people but not really with them.  I panicked when I thought about it.  So I learned not to.  (Q22/RC)

[I] went into a world of my own which meant in my head it wasnt happening. (Q82/Baptist)

In the sense that it was never mentioned and I immediately went into a profound withdrawal (as when a child) until I could block it out isolate it. (Q33/RC)

Others tolerated sex because they desperately needed the money, home, clothes for children the clergy was offering, others did not know what to do and were very fearful.
How did they ‘get out’? Many compared their situation with other abusive scenarios thus recognising abuse and reflecting on their own situation; many realised they were NOT either in a relationship, or special by experiencing violence, threats, secrecy and finding they were not the only woman the clergy person was having sex with. (Most clergy perpetrators of abuse of women have multiple victims it is rarely a once off sexually abusive act.) They reflected on clergy behaviour towards them, often through counselling.
Most were severely harmed
I will never be normal. (4/Ang)

[I am] Severely damaged. (6/House Church) (73/RC)

It was a pivotal point of my degeneration as I call it, or disintegration. (9/RC)

I have been utterly shattered. (83/RC)

It’s blighted my life spiritually, mentally and physically. (6/House Church)

The past overwhelms me. (70/RC)

The toll on woman of clergy sexual exploitation is not just through betrayal, physical harm, emotional harm or rejection. It eats at the core of trust, spirituality, and the notion of a just Church, and a loving God.  Most had left their Church.

Most victims still face shame, for they have not yet been heard or believed in our Churches. Women are still blamed. We are Eve, enticing clergymen, it’s our ‘fault’ – still.
Living with the cross of shame or guilt for a lifetime is certainly not what we should, as Christians, allow, accept or want.
Many victims, leave Church because the way they were treated when they reported was ‘not of God’ and that destroyed all faith. Many leave Church whilst their very abuser is allowed remain in ministry with nothing more than a slap on the wrist.
In my case, I later fought back. My abuser went to America. When strong enough I found him, reported him and the Anglican Church paid for me to go to America to confront him with a therapist present.  I took back my power, I told him how I felt. The therapist (Male), a specialist in professional abuse of woman told me; ‘Margaret, he was a predator’.
I knew he was not safe; he was eventually removed from ministry. The Anglican Church paid compensation and arranged that I could write a Service of ‘Remembrance & Proclamation’ for my healing to which many women and men, abused by clergy as adults attended. For it was not only for me, it was for us all. The Church supplied St Giles in London and an Archdeacon to facilitate OUR service.
The Archdeacon read out a letter;
In the Church, where we witness God’s love for humankind and celebrate the teaching of Jesus to love our neighbours as ourselves, abusive relationships are wholly wrong.   
We are gathered together here at St Giles for those who have suffered sexual exploitation, abuse and rape from the very people they should have been able to rely on for spiritual guidance and support.  Whilst we can be under no illusions that today will ease the suffering of those present, I hope we can at least serve to recognise the ordeal that Dr Margaret Kennedy and others have endured. 
 
I first met Margaret in February this year, and I was shocked to learn about the sexual assaults she had suffered. Whilst the events may have happened twenty-eight years ago, Margaret’s traumatic retelling of her experiences demonstrated the extent to which they are still remembered in her life even today. What happened to Margaret is indefensible and contrary to what the Church and Christian faith stand for. 
 
Much of Margaret’s adult life has been spent in seeking acknowledgment and justice for what happened to her. Fighting for that recognition will, I am sure, have added an additional layer of pain and suffering. I hope that now the Church has been able to provide some support and assistance, although clearly that can never remove the feelings nor replace the energy she has spent in addressing these issues.
In recent years the Church has taken steps to root out  the evil of sexual abuse of children by clergy and to ensure swift and decisive action is taken to deal with those members of the Clergy who have abused children. However, we still have some way to go in tackling the sexual exploitation of adults by clergy by implementing the good practice recommended in the House of Bishops’ Promoting a safe church: Policy for safeguarding adults in the Church of England. This will ensure that pastoral care is characterised by a clear policy, based on Christian ethical standards, and establishing appropriate boundaries and professionalism and  procedures for dealing, without delay, with allegations of mistreatment, spiritual, physical, emotional financial and sexual, abuse, harassment and bullying.

Margaret deserves great credit for the work she has done to support those who have suffered similarly traumatic experiences to herself. The organisation she founded in 1993 - MACSAS- has worked tirelessly to provide information and guidance, a helpline, conferences, website, educational material to victims of clergy sexual abuse, whether they have been abused as children or as adults, and for both those who have remained within their Christian communities and for those who have left.

I pray that Margaret’s own faith will grow and that this service will go some way to acknowledge the truth of her experience and the courage of her journey for justice.  
26 November 2011.
This letter was a wonderful affirmation and I welcomed it. It was indeed unique. (No similar service has ever been held since) I brought all the pain before God, before my fellow sisters in suffering….We supported each other. We knew it was NOT our fault. We did nothing wrong.
It was a ‘closure’ but it was not erasure. I live with what he did; but it was not my fault. I fully know that now.
Its time our Christian Churches say this and remove Clergy and religious leaders, similar to Jean Vanier,  who sexually assault, exploit, abuse, rape and harm women from ministry. The time is now.
To other victims/survivors I hope you’ll find strength to come forward. It was NOT your fault, you did nothing wrong, do not let guilt and shame consume you.
MACSAS – Minister & Clergy Sexual Abuse Survivors’ is ready to help.
I’ll end with two very powerful quotes:

History, despite its wrenching pain
Cannot be unlived
But if faced with courage
Need not be lived again
Maya Angelou

I do not want the peace that passeth understanding
I want the understanding that bringeth peace
Helen Keller

Dr Margaret Kennedy’s PhD thesis can be obtained through the British Library, UK: ‘The Well from which we drink is poisoned; Clergy Sexual Exploitation of Adult Women’ - 2009

UK ONLY: MACSAS contact details: 
General enquiries: enquiries@macsas.org.uk
Helpline enquiries: helpline@macsas.org.uk
Media enquiries: media@macsas.org.uk
Email support: support@macsas.org.uk
Free Helpline: 0808 801 0340

From anywhere in the world I'm at the end of an email: 

Dr Margaret Kennedy: magsken57@gmail.com


[1] All hereafter termed ‘clergy’ for ease of discussion